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Degos-disease. WIKIPEDIA

Degos-disease. WIKIPEDIA

This is a story of the power of perseverance and love. A man named Kevin Lue was triathlete who developed a rare disease that caused his heart to fail. In a matter of months he went from intense competition to barely being able to walk. He needed a heart transplant. In addition to his new heart, he got a whole lot more.

This is a story of the power of perseverance and love. A man named Kevin Lue was triathlete who developed a rare disease that caused his heart to fail.

The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide.  This is a list of rare diseases defined in the United States where a prevalence of less than 200,000 cases is the primary criteria.

Rare Disease List broken down alphabetically, with links to organizations whenever possible. Nearly all 7000 or so rare diseases are on this list! Pudendal Neuralgia and Tarlov Cyst Disease.

Rare Disease Day USA | Alone we are Rare. Together we are Strong.

To raise awareness of rare diseases like the one my son has---Congenital Central Hypoventilation Syndrome (CCHS)

Global Genes Project - Leading Rare and Genetic Disease Non-Profit Organization - Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions

Williams syndrome is a rare genetic disorder caused by the deletion of the long arm of chromosome A random genetic mutation (deletion of a small piece of chromosome rather than inheritance, …

Support RareDiseaseDay February28 and Wear Jeans! The last day of February is Rare Disease Day.

Support and Wear Jeans! The last day of February is Rare Disease Day. is a rare disease

Handprints Across America 2014 « Rare Disease Day USA - Feb. 28 - print a handout and post your photo

Rare Disease Day has grown each year thanks to the individuals who get involved. Learn more about the history of Rare Disease Day.

Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

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