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Rare Disease Day USA | Alone we are Rare. Together we are Strong.

To raise awareness of rare diseases like the one my son has---Congenital Central Hypoventilation Syndrome (CCHS)

The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide.  This is a list of rare diseases defined in the United States where a prevalence of less than 200,000 cases is the primary criteria.

Rare Disease List broken down alphabetically, with links to organizations whenever possible. Nearly all 7000 or so rare diseases are on this list! Pudendal Neuralgia and Tarlov Cyst Disease.

Global Genes Project - Leading Rare and Genetic Disease Non-Profit Organization - Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions

Williams syndrome is a rare genetic disorder caused by the deletion of the long arm of chromosome A random genetic mutation (deletion of a small piece of chromosome rather than inheritance, …

Handprints Across America 2014 « Rare Disease Day USA - Feb. 28 - print a handout and post your photo

Rare Disease Day has grown each year thanks to the individuals who get involved. Learn more about the history of Rare Disease Day.

Rare Disease UK logo

Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

RARE DISEASE DAY 2013 ~ Come share your story!

Rare Disease Day 2013 - February For my bestest BIG boy now, Wyatt!

Support RareDiseaseDay February28 and Wear Jeans! The last day of February is Rare Disease Day.

Support and Wear Jeans! The last day of February is Rare Disease Day. is a rare disease

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